Imagine if every time you searched for an answer, you didn’t find what you were looking for. For those affected by a rare disease, this is an every day reality. On Tuesday, February 28, people all over the world are raising awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives during Rare Disease Day.
RARE Bear sew-in
Last year, the Spoonflower community came together for the first ever International RARE Bear Sew-in supporting RARE Science, and you blew us away with your generosity! We are excited to announce that on March 18th, Spoonflower will be hosting our 2nd annual International RARE Bear sew-in for the one-of-a-kind children supported by RARE Science. It’s time to spring into action for kids!
This past Saturday, over 30 community members and Spoonflower employees spent the afternoon sewing RARE Bears for one-of-a-kind kids supported by RARE Science Inc., a non-profit research organization accelerating cures for rare childhood diseases. On this very special afternoon, quilt guilds, sewing groups, and crafty individuals stitched up bears all over the country to Spring into Action. From California to here in Durham, North Carolina, it was RARE Bear mania!